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🎀 πŸŽ₯ 🎬 You're Invited to the 2022 RAREly Told Stories filmmaking workshop

  • 1.  🎀 πŸŽ₯ 🎬 You're Invited to the 2022 RAREly Told Stories filmmaking workshop

    Posted 05-03-2022 16:03

    🎀 πŸŽ₯ 🎬  You're Invited to the RAREly Told Stories filmmaking workshop

    You are invited to participate in an exclusive workshop with The Disorder Channel and could win a trip to have your film screened at our Patient Advocacy Summit in September or our RARE Health Equity Summit in November!

    If you've been wanting to tell the story of your experience with a rare disease, the RAREly Told Stories Workshop can help you learn to document your journey.  

    We're excited to hear your story.

    What is the RAREly Told Stories Workshop?

    One of the most impactful ways to tell your story is through video and film-making. As parents to children with rare diseases, Bo Bigelow and Daniel DeFabio founded The Disorder Channel and Disorder: The Rare Disease Film Festival in order to amplify the individual stories and voices of the rare disease community to improve access to quality care. Through their efforts they have been able to bring increased attention to more than 150 rare diseases. #rarelytoldstories

    Global Genes is thrilled to be partnering with The Disorder Channel, which will host a unique virtual workshop for advocates to improve their skills in documenting their journey and highlighting their perspective of rare diseases. The workshop is your chance to learn the basics of film or video production from award winning rare disease filmmakers. You will learn what to shoot, how to shoot it, and how to edit it into your finished video.

    May 31, Noon -1pm EST
    Registration details coming soon.

    Related resources, videos and discussions are on this page. (you must be logged in).


    Daniel DeFabio

    Global Genes
    Director Community Engagement, Global Genes