Anyone who caught the AMA with Reena heard about a dramatic play her university was putting on related to rare disease.
I found this section of the play's program interesting:
"
STORYTELLER's noteWhen Dante wrote the
Divine Comedy, he referred to the underworld as
"Dis," Latin for "the underworld," the place of shadow and reflection. Dante
understood you cannot cure a loss–whether it's a broken heart or limb, a
promise or a person. The heart is especially an instrument that once broken
never plays the same. But, although it can't be cured, it can be healed. And
Dante knew this; he knew Dis was a necessary step to reach Paradise. It's also
the prefix for words like "disease" and "disability," which doesn't mean
inability. It means able through another way, able through the world of
shadow and reflection, with a foot in two worlds: "Dis.""
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Daniel DeFabio
Global Genes
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Original Message:
Sent: 11-24-2021 13:16
From: Daniel Defabio
Subject: 5 things we learned from Reena Kartha PhD in her Ask Me Anything
· "The future of rare diseases is dependent on global trials which have to be digital or virtual trials." – RK
· "Researchers (PhDs) do [research] for a living and can spare 24x7 of their time for this purpose, unlike physicians who are overextended." – RK
· "The goal [of the course] is to engage students in thinking critically about the challenges that we are currently facing and will be facing in the future." – RK
· "I'm so grateful for the experience I gained in the few weeks I attended this course, as it's already made me feel like I'm less alone and that I can get through this." – Feedback from one of Reena's students taking her course.
· "Currently, not many rare diseases have a cure. The current therapies manage the disease or symptoms. Hence managing oxidative stress and/or inflammation is a strategy being adopted in the rare disease field." – RK
To view the full AMA session with Rena log in and go here.
#AMA #clinicaltrialaccess #oxidativestress
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Daniel DeFabio
Global Genes
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