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πŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΏβ€πŸ’ΌπŸ‘©πŸ»β€πŸ”¬πŸ™ŽπŸ½β€β™€οΈThe Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges

  • 1.  πŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΏβ€πŸ’ΌπŸ‘©πŸ»β€πŸ”¬πŸ™ŽπŸ½β€β™€οΈThe Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges

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    Posted 03-16-2022 11:31
    πŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΏβ€πŸ’ΌπŸ‘©πŸ»β€πŸ”¬πŸ™ŽπŸ½β€β™€οΈ "if patients are in a community that struggles to afford access to genetic testing, for example, and they don't have adequate coverage, or their insurer doesn't provide coverage for certain types of testing, then they may be at a disadvantage in getting a diagnosis, or they may not be aware of the things to look for in terms of signs and symptoms of a condition and how to communicate those things to a clinician in a way that clearly conveys the significance of it. 

    ...

    If a caregiver is in a situation where they already feel somewhat hesitant about interacting with the medical community, that can create additional challenges. If the best path forward for that patient is genetic testing of some kind, for example, and there's scepticism among patients from that community about that sort of testing and what it'll be used for, it could delay or even prevent a diagnosis from happening. " #EDI

    Read the interview with GG CEO Craig Martin at Rare Revolution Magazine here.

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    Daniel DeFabio
    Global Genes
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