We often ask a simple one question poll on rare disease topics.Most of the pages listed under BROWSE have their own quick poll in the right side column.
On our FAIR page (Financial Advocacy in Rare) We're asking What is your biggest direct cost burden?
On our CNS page (PIE4CNS, Patient Identification for Central Nervous System Disorders) we're asking
How many wrong diagnoses did you get before your correct diagnosis?
We also have poll questions related to:
EDI (Equity Diversity Inclusion) in Rare.
Rare AdultsRecently Diagnosed
Be sure to log in to answer these polls.
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Phone: (+1) 949-248-RARE (7273)
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