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  • 1.  Popular Quick Polls

    Posted 11-24-2021 14:30
    Edited by Daniel Defabio 11-24-2021 14:34

    We often ask a simple one question poll on rare disease topics.
    Most of the pages listed under BROWSE have their own quick poll in the right side column.

    On our FAIR page (Financial Advocacy in Rare) We're asking What is your biggest direct cost burden?

    On our CNS page (PIE4CNS, Patient Identification for Central Nervous System Disorders) we're asking

    How many wrong diagnoses did you get before your correct diagnosis?

    A bar graph image of a Quick Poll and a button to

    We also have poll questions related to:

    EDI (Equity Diversity Inclusion) in Rare.

    Rare Adults
    Recently Diagnosed

    Be sure to log in to answer these polls.

    Daniel DeFabio
    Global Genes