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🇺🇦  Rare disease kids suffer most in Russia's war on Ukraine

  • 1.  🇺🇦  Rare disease kids suffer most in Russia's war on Ukraine

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    Posted 03-09-2022 17:07
    "Yuliya has only one week's supply left of risdiplam (Evrysdi®) ...Yuliya is one of an estimated two million Ukrainians with rare diseases ranging from cystic fibrosis to pulmonary hypertension who are now trapped by bitter street battles across this country of 44 million, which was already Europe's poorest even before current hostilities broke out." #ukraine #refugee
    ​
    Read the article here.

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    Daniel DeFabio
    Global Genes
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