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1 to 21 of 21 threads (27 total posts)
  Thread Subject Replies Views Last Post Status
Poster Opportunity: Submit to present a poster at Global Genes 2022 Patient Advocacy Summit!
0 4 24 days ago by Shelby Carney
๐Ÿฉ We need to ritualize chronic compassion. 0 7 3 months ago by Daniel Defabio
๐ŸŒท๐Ÿ’For Mothers Day - Being a mom while being Rare - film
0 5 3 months ago by Daniel Defabio
๐Ÿ’งHealthy grieving
1 9 3 months ago by Daniel Defabio
๐ŸŽค ๐ŸŽฅ ๐ŸŽฌ You're Invited to the 2022 RAREly Told Stories filmmaking workshop
0 10 3 months ago by Daniel Defabio
๐Ÿ”ฆ๐Ÿ”ŽUndiagnosed Rare Disease Day April 29 - Searching for a Diagnosis - podcast
0 1 3 months ago by Daniel Defabio
๐Ÿ˜ฐ April 16 is stress awareness day - we've got some help for that stress
0 0 4 months ago by Daniel Defabio
๐Ÿง  ๐Ÿ”€ The surprising twist behind a rare neurological disorder -- episodic ataxia 6
0 3 4 months ago by Daniel Defabio
5 things we learned from Reena Kartha PhD in her Ask Me Anything 1 6 4 months ago by Daniel Defabio
๐Ÿ‘ฉ๐Ÿฝโ€โš•๏ธ๐Ÿ‘ฉ๐Ÿฟโ€๐Ÿ’ผ๐Ÿ‘ฉ๐Ÿปโ€๐Ÿ”ฌ๐Ÿ™Ž๐Ÿฝโ€โ™€๏ธThe Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
0 9 5 months ago by Daniel Defabio
๐Ÿ‡บ๐Ÿ‡ฆ URGENT SUPPORT AND AID NEEDED FOR UKRAINIAN PATIENTS WITH RARE DISEASES
0 2 5 months ago by Daniel Defabio
๐Ÿ‡บ๐Ÿ‡ฆย ย Rare disease kids suffer most in Russia's war on Ukraine
0 2 5 months ago by Daniel Defabio
Call for participants in Rare Compassion 2022
1 32 5 months ago by Daniel Defabio
The Game of Rare
1 15 7 months ago by Daniel Defabio
Accessible Vehicles Aren't Born, They're Made -- not affordably either 0 4 7 months ago by Daniel Defabio
How to lose a $1000+ donor
0 14 8 months ago by Daniel Defabio
Introduction to Genetic Disorders - cartoon explainer
1 25 8 months ago by Daniel Defabio
Original post by Anonymous Member
What would you say is the biggest hurdle for patients to getting an accurate, meaningful genetic diagnosis?
0 8 8 months ago by Anonymous Member
Popular Quick Polls
0 6 8 months ago by Daniel Defabio
How WGS Ended Donovan's 6-Year Diagnostic Odyssey - video #GBDx
0 3 8 months ago by Daniel Defabio
What's your (rare disease) super power?
1 12 8 months ago by Anonymous Member