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βοΈ The NEXT Report - Become a Citizen Scientist
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0
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16
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13 days ago
by
Daniel Defabio
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π A very brief history of Rare Disease podcasts
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0
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5
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16 days ago
by
Daniel Defabio
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βοΈ The NEXT Report- How to Leverage Technology
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0
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3
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17 days ago
by
Daniel Defabio
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π§¬π©π»βπ¬ It's Women's History Month - Meet the woman who shaped DNA
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0
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6
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24 days ago
by
Daniel Defabio
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βοΈ The NEXT report - How to Change Regulators Thinking
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0
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5
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26 days ago
by
Daniel Defabio
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π« π For Caregivers Day (Feb 17) Rare Disease Caregiving in America
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0
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2
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one month ago
by
Daniel Defabio
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National Caregivers Day is Feb. 17
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0
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0
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one month ago
by
Daniel Defabio
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π¦ 10,867, rare diseases -- 2022 was a breakthrough year for understanding rare diseases.
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0
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4
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one month ago
by
Daniel Defabio
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β Global Gene's RARE-X and CoRDS Collaborate to Improve Patient Outcomes for Rare Diseases
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0
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5
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2 months ago
by
Daniel Defabio
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ππ§ Raising Rare reflects on GG Patient Advocacy Summit - podcast
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0
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4
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2 months ago
by
Daniel Defabio
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π¦ Rare Parents Tackling Rare Diseases - article
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0
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8
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2 months ago
by
Daniel Defabio
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π Dealing with the Diagnosis
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0
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2
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3 months ago
by
Daniel Defabio
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π π The most radically inclusive film I have ever seen
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0
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8
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5 months ago
by
Daniel Defabio
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π· πΈ SpiderMan comics get a new superhero with EDS
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0
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6
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5 months ago
by
Daniel Defabio
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π©Ί π¦ Advice for the newly diagnosed with rare (podcast)
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0
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4
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5 months ago
by
Daniel Defabio
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ππ» Like a post here
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0
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3
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6 months ago
by
Daniel Defabio
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Newly diagnosed and feeling scared or alone? This videos is for YOU!
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0
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6
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6 months ago
by
Shelby Carney
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π§ π¬ September is STXBP1 awareness month - there's a film about it. Or two.
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0
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6
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6 months ago
by
Daniel Defabio
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β Airlines May Be Required To Accommodate Travelers In Their Wheelchairs βΏ
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0
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3
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6 months ago
by
Anonymous Member
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Poster Opportunity: Submit to present a poster at Global Genes 2022 Patient Advocacy Summit!
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0
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10
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8 months ago
by
Shelby Carney
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π© We need to ritualize chronic compassion.
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0
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7
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10 months ago
by
Daniel Defabio
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π·πFor Mothers Day - Being a mom while being Rare - film
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0
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5
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10 months ago
by
Daniel Defabio
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π§Healthy grieving
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1
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10
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10 months ago
by
Daniel Defabio
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π€ π₯ π¬ You're Invited to the 2022 RAREly Told Stories filmmaking workshop
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0
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11
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10 months ago
by
Daniel Defabio
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π¦πUndiagnosed Rare Disease Day April 29 - Searching for a Diagnosis - podcast
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0
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2
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11 months ago
by
Daniel Defabio
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π° April 16 is stress awareness day - we've got some help for that stress
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0
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1
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11 months ago
by
Daniel Defabio
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π§ π The surprising twist behind a rare neurological disorder -- episodic ataxia 6
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0
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3
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11 months ago
by
Daniel Defabio
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5 things we learned from Reena Kartha PhD in her Ask Me Anything
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1
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8
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one year ago
by
Daniel Defabio
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π©π½ββοΈπ©πΏβπΌπ©π»βπ¬ππ½ββοΈThe Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
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0
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22
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one year ago
by
Daniel Defabio
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πΊπ¦ URGENT SUPPORT AND AID NEEDED FOR UKRAINIAN PATIENTS WITH RARE DISEASES
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0
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2
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one year ago
by
Daniel Defabio
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πΊπ¦Β Β Rare disease kids suffer most in Russia's war on Ukraine
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0
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2
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one year ago
by
Daniel Defabio
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Call for participants in Rare Compassion 2022
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1
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35
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one year ago
by
Daniel Defabio
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The Game of Rare
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1
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15
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one year ago
by
Daniel Defabio
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Accessible Vehicles Aren't Born, They're Made -- not affordably either
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0
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4
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one year ago
by
Daniel Defabio
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How to lose a $1000+ donor
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0
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30
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one year ago
by
Daniel Defabio
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Introduction to Genetic Disorders - cartoon explainer
Genetic Diagnosis - WGS, WES
GBDX
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1
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48
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one year ago
by
Daniel Defabio
Original post by
Anonymous Member
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What would you say is the biggest hurdle for patients to getting an accurate, meaningful genetic diagnosis?
Genetic Diagnosis - WGS, WES
GBDX
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0
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10
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one year ago
by
Anonymous Member
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Popular Quick Polls
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0
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7
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one year ago
by
Daniel Defabio
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How WGS Ended Donovan's 6-Year Diagnostic Odyssey - video #GBDx
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0
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3
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one year ago
by
Daniel Defabio
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What's your (rare disease) super power?
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1
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12
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one year ago
by
Anonymous Member
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