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1 to 43 of 43 threads (49 total posts)
  Thread Subject Replies Views Last Post Status
🧠 🧬 Researchers discover a novel genetic disorder associated with neurodevelopmental differences 0 17 5 months ago by Daniel Defabio
🌍 📊 Global Genes Impact Report: Building on a Successful 2022 0 5 5 months ago by Daniel Defabio
5️⃣ 💟 5 things we learned from Gina Glass during our AMA 0 14 6 months ago by Daniel Defabio
↗️ The NEXT Report - Become a Citizen Scientist 0 32 6 months ago by Daniel Defabio
🎙 A very brief history of Rare Disease podcasts
0 22 6 months ago by Daniel Defabio
↗️ The NEXT Report- How to Leverage Technology 0 6 6 months ago by Daniel Defabio
🧬👩🏻‍🔬 It's Women's History Month - Meet the woman who shaped DNA
0 6 7 months ago by Daniel Defabio
↗️ The NEXT report - How to Change Regulators Thinking 0 5 7 months ago by Daniel Defabio
🫂 📘 For Caregivers Day (Feb 17) Rare Disease Caregiving in America
0 2 7 months ago by Daniel Defabio
National Caregivers Day is Feb. 17 0 0 7 months ago by Daniel Defabio
🦓 10,867, rare diseases -- 2022 was a breakthrough year for understanding rare diseases. 0 6 7 months ago by Daniel Defabio
❎ Global Gene's RARE-X and CoRDS Collaborate to Improve Patient Outcomes for Rare Diseases 0 7 8 months ago by Daniel Defabio
🎙🎧 Raising Rare reflects on GG Patient Advocacy Summit - podcast 0 4 8 months ago by Daniel Defabio
🦓 Rare Parents Tackling Rare Diseases - article 0 9 8 months ago by Daniel Defabio
🔎 Dealing with the Diagnosis
0 3 10 months ago by Daniel Defabio
🎞 🌟 The most radically inclusive film I have ever seen
0 8 11 months ago by Daniel Defabio
🕷 🕸 SpiderMan comics get a new superhero with EDS 0 7 one year ago by Daniel Defabio
🩺 🦓 Advice for the newly diagnosed with rare (podcast) 0 4 one year ago by Daniel Defabio
👍🏻 Like a post here
0 3 one year ago by Daniel Defabio
Newly diagnosed and feeling scared or alone? This videos is for YOU!
0 6 one year ago by Shelby Carney
🧠 🎬 September is STXBP1 awareness month - there's a film about it. Or two.
0 7 one year ago by Daniel Defabio
✈ Airlines May Be Required To Accommodate Travelers In Their Wheelchairs ♿ 0 3 one year ago by Anonymous Member
Poster Opportunity: Submit to present a poster at Global Genes 2022 Patient Advocacy Summit!
0 11 one year ago by Shelby Carney
🏩 We need to ritualize chronic compassion. 0 7 one year ago by Daniel Defabio
🌷💐For Mothers Day - Being a mom while being Rare - film
0 5 one year ago by Daniel Defabio
💧Healthy grieving
1 10 one year ago by Daniel Defabio
🎤 🎥 🎬 You're Invited to the 2022 RAREly Told Stories filmmaking workshop
0 11 one year ago by Daniel Defabio
🔦🔎Undiagnosed Rare Disease Day April 29 - Searching for a Diagnosis - podcast
0 2 one year ago by Daniel Defabio
😰 April 16 is stress awareness day - we've got some help for that stress
0 1 one year ago by Daniel Defabio
🧠 🔀 The surprising twist behind a rare neurological disorder -- episodic ataxia 6
0 5 one year ago by Daniel Defabio
5 things we learned from Reena Kartha PhD in her Ask Me Anything 1 9 one year ago by Daniel Defabio
👩🏽‍⚕️👩🏿‍💼👩🏻‍🔬🙎🏽‍♀️The Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
0 26 one year ago by Daniel Defabio
🇺🇦 URGENT SUPPORT AND AID NEEDED FOR UKRAINIAN PATIENTS WITH RARE DISEASES
0 2 one year ago by Daniel Defabio
🇺🇦  Rare disease kids suffer most in Russia's war on Ukraine
0 2 one year ago by Daniel Defabio
Call for participants in Rare Compassion 2022
1 37 one year ago by Daniel Defabio
The Game of Rare
1 15 one year ago by Daniel Defabio
Accessible Vehicles Aren't Born, They're Made -- not affordably either 0 4 one year ago by Daniel Defabio
How to lose a $1000+ donor
0 38 one year ago by Daniel Defabio
Introduction to Genetic Disorders - cartoon explainer
1 61 one year ago by Daniel Defabio
Original post by Anonymous Member
What would you say is the biggest hurdle for patients to getting an accurate, meaningful genetic diagnosis?
0 11 one year ago by Anonymous Member
Popular Quick Polls
0 15 one year ago by Daniel Defabio
How WGS Ended Donovan's 6-Year Diagnostic Odyssey - video #GBDx
0 3 one year ago by Daniel Defabio
What's your (rare disease) super power?
1 12 one year ago by Anonymous Member