Popular on RARE Portal

My communities
The discussion topics below are sorted by most recent as the default.Β  You might try changing this to "most replies" to find the most popular topics.

  Thread Subject Replies Views Last Post Status
πŸ”Ž Dealing with the Diagnosis
0 0 6 days ago by Daniel Defabio
🎞 🌟 The most radically inclusive film I have ever seen
0 4 2 months ago by Daniel Defabio
πŸ•· πŸ•Έ SpiderMan comics get a new superhero with EDS 0 4 2 months ago by Daniel Defabio
🩺 πŸ¦“ Advice for the newly diagnosed with rare (podcast) 0 3 2 months ago by Daniel Defabio
πŸ‘πŸ» Like a post here
0 3 3 months ago by Daniel Defabio
Newly diagnosed and feeling scared or alone? This videos is for YOU!
0 3 3 months ago by Shelby Carney
🧠 🎬 September is STXBP1 awareness month - there's a film about it. Or two.
0 6 3 months ago by Daniel Defabio
✈ Airlines May Be Required To Accommodate Travelers In Their Wheelchairs β™Ώ 0 2 3 months ago by Anonymous Member
Poster Opportunity: Submit to present a poster at Global Genes 2022 Patient Advocacy Summit!
0 9 4 months ago by Shelby Carney
🏩 We need to ritualize chronic compassion. 0 7 6 months ago by Daniel Defabio
πŸŒ·πŸ’For Mothers Day - Being a mom while being Rare - film
0 5 7 months ago by Daniel Defabio
πŸ’§Healthy grieving
1 9 7 months ago by Daniel Defabio
🎀 πŸŽ₯ 🎬 You're Invited to the 2022 RAREly Told Stories filmmaking workshop
0 11 7 months ago by Daniel Defabio
πŸ”¦πŸ”ŽUndiagnosed Rare Disease Day April 29 - Searching for a Diagnosis - podcast
0 2 7 months ago by Daniel Defabio
😰 April 16 is stress awareness day - we've got some help for that stress
0 1 7 months ago by Daniel Defabio
🧠 πŸ”€ The surprising twist behind a rare neurological disorder -- episodic ataxia 6
0 3 8 months ago by Daniel Defabio
5 things we learned from Reena Kartha PhD in her Ask Me Anything 1 6 8 months ago by Daniel Defabio
πŸ‘©πŸ½β€βš•οΈπŸ‘©πŸΏβ€πŸ’ΌπŸ‘©πŸ»β€πŸ”¬πŸ™ŽπŸ½β€β™€οΈThe Global Genes Rare Disease Diversity, Equity and Inclusion Report: the challenges
0 11 8 months ago by Daniel Defabio
πŸ‡ΊπŸ‡¦ URGENT SUPPORT AND AID NEEDED FOR UKRAINIAN PATIENTS WITH RARE DISEASES
0 2 9 months ago by Daniel Defabio
πŸ‡ΊπŸ‡¦Β Β Rare disease kids suffer most in Russia's war on Ukraine
0 2 9 months ago by Daniel Defabio
Call for participants in Rare Compassion 2022
1 34 9 months ago by Daniel Defabio
The Game of Rare
1 15 10 months ago by Daniel Defabio
Accessible Vehicles Aren't Born, They're Made -- not affordably either 0 4 11 months ago by Daniel Defabio
How to lose a $1000+ donor
0 22 11 months ago by Daniel Defabio
Introduction to Genetic Disorders - cartoon explainer
1 38 one year ago by Daniel Defabio
Original post by Anonymous Member
What would you say is the biggest hurdle for patients to getting an accurate, meaningful genetic diagnosis?
0 8 one year ago by Anonymous Member
Popular Quick Polls
0 7 one year ago by Daniel Defabio
How WGS Ended Donovan's 6-Year Diagnostic Odyssey - video #GBDx
0 3 one year ago by Daniel Defabio
What's your (rare disease) super power?
1 12 one year ago by Anonymous Member