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  • Hi Everyone! Our Patient Advocacy Summit coming up and we wanted to invite you to apply for our poster presentations! Our ...

  • 🏩 We need to ritualize chronic compassion. As a society were do ok to pretty well with compassion at key acute moments like ...

  • @Maria Hadjidemetriou has made a wonderful film about not only her experience as a #RareAdult but the impact on being a mom ...

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