Community Home

My communities
blue bar stripe

Latest Discussions

orange line

Global Genes Slideshow

Unanswered Questions

  • Hi. I am looking for other Canadians who have applied for Out-of-Country Funding through their provincial health care plan. ...

  • <main> A new children's book is helping families talk about rare, fatal Batten disease By Kathleen Calderwood ...

  • This is such incredible news for our rare disease community. A gene thereapy and an FDA granted treatment in 3 years!! From rare ...

A slide show of tips for using the Portal, also found in our FAQ

Latest Shared Files

Log in to see this information

Either the content you're seeking doesn't exist or it requires proper authentication before viewing.

Top Posts to Explore