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🩺 🦓 Advice for the newly diagnosed with rare (podcast)

  • 1.  🩺 🦓 Advice for the newly diagnosed with rare (podcast)

    CONNECTED
    WITH
    OTHERS
    Posted 09-28-2022 08:32

    🩺 🦓 On the Confessions of a Rare Mama podcast Jillian Arnold  did a great episode talking it through step by step after a diagnosis, how do you find those who can help. Both emotional and financial support are covered as well as connecting to treatment options when there seem to be few or none.

    Jump in at the 17 minute mark if you just want the tips

    or listen to the whole episode. #NewlyDiagnosed #JustDiagnosed #FAIR #financialsupport #niemannpick
    Listen here.​​​​

    It's episode 6

    How to make connections and utilize all your resources as a rare disease parent



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    Daniel DeFabio

    Global Genes
    Director Community Engagement, Global Genes
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