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❎ Global Gene's RARE-X and CoRDS Collaborate to Improve Patient Outcomes for Rare Diseases

  • 1.  ❎ Global Gene's RARE-X and CoRDS Collaborate to Improve Patient Outcomes for Rare Diseases

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    Posted 18 days ago

    Partnership supports rare disease research and breaking down data silos to accelerate treatments 

    "CoRDS already helps link patients to researchers and clinical trials that are available for them," said Dr. David Pearce, president of Sanford Research. "By collaborating with RARE-X, we can help ensure we can support expanded data collection and interoperability between existing CoRDS registries and RARE-X."

    RARE-X recognizes the many data gaps that exist in rare disease research and understands the importance of data sharing and data interoperability for researchers. RARE-X offers an automated and structured platform to support standardized data collection while enabling patient communities with proper governance, consent, and technology that can support a data ecosystem built for discovery.

    "We are collaborating with CoRDS to expand the gathering of patient-reported outcomes from their health data," said Charlene Son Rigby, CEO of Global Genes. #researchReadiness #researchcollabortations #patientdatastrategy

    Read more here.

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    Daniel DeFabio

    Global Genes
    Director of community engagement
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