RARE Champions of Hope

When:  Nov 18, 2021 from 19:00 to 21:30 (ET)

Groundbreakers. Leaders. Advocates. The rare disease community is full of people who inspire us all through innovation, research, compassion and a relentless spirit to affect positive change. Through the RARE Champions of Hope Awards, we honor and recognize true champions for rare disease. This year we will be recognizing leaders who have made a significant impact in advocacy, industry, medical care, science, as well as up-and-coming rare disease leaders.  The 2021 Champions of Hope event will be an in-person event in Philadelphia, PA that will also be livestreamed to be able to watch virtually.


The 2021 RARE Champions of Hope nomination period is now closed. Registration for the event will open in early Fall 2021. Selected RARE Champion of Hope awardees will be confidentially notified by the end of September. Awardees will also be publicly recognized at the RARE Champion of Hope Celebration on Thursday, November 18, 2020 during the live event.