Patient Advocacy Summit

Starts:  Sep 12, 2022 09:00 (PT)
Ends:  Sep 14, 2022 17:00 (PT)

Sept 12 - Wednesday, September 14 , 2022

Each year, Global Genes convenes one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, partners, and allies. This year’s event will be hosted at the Town & Country Hotel, 500 Hotel Cir N, San Diego, CA 92108. 

Why attend?

  • Access the latest resources, information, and tools
  • Connect with your peers and speakers in chat and discussion boards, and event sponsors in the virtual exhibit hall 
  • Engage with rare international leaders in our first-ever international regional meetings
  • Watch film selections from The Disorder Channel, and hear from their directors
  • Browse the virtual poster hall to learn from case studies in rare collaboration, health equity, financial advocacy, and more


Coming Soon: 2022 registration information, agenda, speaker details, and more!

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