June BG

Global Genes RARE Portal 

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How does the Global Genes RARE Portal benefit you? 

  • Network with your peers, worldwide.   
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  • Collaborate and initiate discussions with other rare disease stakeholders
  • Decide what personal data you want to share with the community. 
  • Make meaningful connections with others who share a similar health journey. 


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Global Genes RARE Daily

  • April was a brutal month for therapeutics drug developers in general, with daily announcements of workforce reductions and pipeline prioritization in efforts to conserve cash and extend their runway. At the end of April, total capital raised by therapeutics companies year-to-date was 40 percent below the same period in 2021, and down almost 50 percent The post Rare Disease Drug Developers Face Bear Market in April appeared first on Global Genes .
  • Marie Daghlian Bearish capital markets continue to exact a heavy toll on rare disease therapeutics developers as two more companies joined the growing queue of companies cutting staff and prioritizing their pipelines to conserve cash and extend their runways. The list of restructurings of rare disease drug developers compiled by Global Genes now numbers 18 The post Scholar Rock and Agios Announce Prioritizations and Workforce Reductions appeared first on Global Genes .
  • Rare Daily Staff Ultragenyx Pharmaceutical has entered into an exclusive license agreement with Abeona Therapeutics for its AAV gene therapy ABO-102 for the treatment of Sanfilippo syndrome type A. Under the terms of the agreement, Ultragenyx will assume responsibility for the ABO-102 program and in return Abeona is eligible to receive tiered royalties of up The post Ultragenyx Acquires Global Rights to Abeona Gene Therapy for Sanfilippo Syndrome appeared first on Global Genes .