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Global Genes RARE Portal 

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Welcome!

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NOTE: If your last logged in here was prior to June 2021 you will need to login as if "I forgot my password"

Begin by clearing your browser cache.

  1. Click the blue Login button (top right) and then select “Forgot Password”  

  2. Enter your email address using only lower case.

  3. You’ll get an authentication code by email

  4. Enter code and then set your new password, Submit.

  5. Once you have logged in you’ll be routed back to www.rarecommunity.org on the home page.

  6. It will still appear as if you are NOT logged in. Just click the blue Login button and you’ll be in.

 If you never had a RARE Portal account with us and would like one, you can make that request here.

Using this second method  you will need to wait 30 minutes after you get your reset code before logging in.

 

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Connect and engage with others like you through discussions and events.

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Inspire others with your own story, and be inspired by reading the latest news and community stories.


How does the Global Genes RARE Portal benefit you? 

  • Network with your peers, worldwide.   
  • Find and share resources  
  • Collaborate and initiate discussions with other rare disease stakeholders
  • Decide what personal data you want to share with the community. 
  • Make meaningful connections with others who share a similar health journey. 

https://www.rarecommunity.org/

Upcoming Events


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Popular Discussions

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The tag cloud below is a quick way to see what topics are trending in our communities. Bigger words have had more posts recently.  Click on any tag to see all the posts with that tag.  Don't forget to hashtag your own posts and replies.
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