June BG

Global Genes RARE Portal 

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NOTE: If your last logged in here was prior to June 2021 you will need to login as if "I forgot my password"

Begin by clearing your browser cache.

  1. Click the blue Login button (top right) and then select “Forgot Password”  

  2. Enter your email address using only lower case.

  3. You’ll get an authentication code by email

  4. Enter code and then set your new password, Submit.

  5. Once you have logged in you’ll be routed back to www.rarecommunity.org on the home page.

  6. It will still appear as if you are NOT logged in. Just click the blue Login button and you’ll be in.

 If you never had a RARE Portal account with us and would like one, you can make that request here.

Using this second method  you will need to wait 30 minutes after you get your reset code before logging in.


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Connect and engage with others like you through discussions and events.

Empower yourself through education - with over 600 tools and resources.

Inspire others with your own story, and be inspired by reading the latest news and community stories.

How does the Global Genes RARE Portal benefit you? 

  • Network with your peers, worldwide.   
  • Find and share resources  
  • Collaborate and initiate discussions with other rare disease stakeholders
  • Decide what personal data you want to share with the community. 
  • Make meaningful connections with others who share a similar health journey. 


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The tag cloud below is a quick way to see what topics are trending in our communities. Bigger words have had more posts recently.  Click on any tag to see all the posts with that tag.  Don't forget to hashtag your own posts and replies.
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Global Genes RARE Daily

  • Organization Name: wAIHA Warriors Disease Affiliation: Autoimmune Disorders Mission:To alleviate suffering and the socioeconomic impact of wAIHA through fostering and facilitating collaboration in the areas of education, public awareness, research, and patient engagement. What led you to the rare disease community? I was diagnosed with warm Autoimmune Hemolytic Anemia in 2019 and desperate for information. The post RARE Global Advocacy Alliance Member Spotlight: Karen Jones appeared first on Global Genes .
  • Rare Daily Staff Genetic medicines focused biotech ReCode Therapeutics raised $120 million in a new financing, bringing the total raised in its series B funding to $200 million, which it will use to expand its next-generation lipid nanoparticle drug delivery platform and pipeline of mRNA and gene correction medicines into the clinic. New investors Leaps The post ReCode Raises $120 Million to Expand LNP Delivery Platform and Diversify Pipeline appeared first on Global Genes .
  • Rare Daily Staff After significant downsizing, selling certain assets, and dealing with an activist shareholder lawsuit, Catalyst Biosciences said it is preparing to liquidate and distribute cash to the company’s stockholders through one or more distributions. Catalyst’s Board of Directors intends to maximize the size of the total distribution after satisfying or reserving for obligations, The post Catalyst Prepares to Liquidate, Will Distribute Cash to Stockholders appeared first on Global Genes .