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Global Genes RARE Portal 

Who We Are

Welcome!

UPDATE: Today Jan. 30, 2023 you should see changes to our login.
The login will function largely the same as it has but with fewer steps for most users.

It will have a different visual look. We hope this creates an easier user experience.

If you are having trouble logging in contact helpdesk@globalgenes.org

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If you're having trouble logging in, begin by clearing your browser cache.

  1. Click the blue Login button (top right) and then select “Forgot Password”  

  2. Enter your email address using only lower case.

  3. You’ll get an authentication code by email

  4. Enter code and then set your new password, Submit.

  5. Once you have logged in you’ll be routed back to www.rarecommunity.org on the home page.

  6. It will still appear as if you are NOT logged in. Just click the blue Login button and you’ll be in.

 If you never had a RARE Portal account with us and would like one, you can make that request here.

 

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Until you do many sections here will appear to have no content, and links you receive in emails from us to content here will not work.


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Connect and engage with others like you through discussions and events.

Empower yourself through education - with over 600 tools and resources.

Inspire others with your own story, and be inspired by reading the latest news and community stories.


How does the Global Genes RARE Portal benefit you? 

  • Network with your peers, worldwide.   
  • Find and share resources  
  • Collaborate and initiate discussions with other rare disease stakeholders
  • Decide what personal data you want to share with the community. 
  • Make meaningful connections with others who share a similar health journey. 

https://www.rarecommunity.org/

Upcoming Events


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https://www.rarecommunity.org/

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