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Global Genes RARE Portal 

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System testing.
On December 12th, 2022 from 9am-11am EST

Members will be unable to log in as we test new features.


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NOTE: If your last logged in here was prior to June 2021 you will need to login as if "I forgot my password"

Begin by clearing your browser cache.

  1. Click the blue Login button (top right) and then select “Forgot Password”  

  2. Enter your email address using only lower case.

  3. You’ll get an authentication code by email

  4. Enter code and then set your new password, Submit.

  5. Once you have logged in you’ll be routed back to www.rarecommunity.org on the home page.

  6. It will still appear as if you are NOT logged in. Just click the blue Login button and you’ll be in.

 If you never had a RARE Portal account with us and would like one, you can make that request here.

Using this second method  you will need to wait 30 minutes after you get your reset code before logging in.


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How does the Global Genes RARE Portal benefit you? 

  • Network with your peers, worldwide.   
  • Find and share resources  
  • Collaborate and initiate discussions with other rare disease stakeholders
  • Decide what personal data you want to share with the community. 
  • Make meaningful connections with others who share a similar health journey. 


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  • Rare Daily Staff The California Institute for Regenerative Medicine awarded two grants to fund the development of gene therapies for two rare diseases. University of California, San Diego associate professor Stephanie Cherqui and colleagues were awarded a grant of $4.8 million to develop a novel gene therapy to treat Friedreich’s ataxia. Friedreich’s ataxia (FA) is The post CIRM Grants $8.8 Million to Pursue Gene Therapies for Two Rare Diseases appeared first on Global Genes .
  • Rare Daily Staff Genome editing biotech Intellia Therapeutics said it priced an underwritten public offering of 6.6 million shares of its common stock at a public offering price of $45.80 per share, and also granted the underwriter a 30-day option to purchase up to an additional 1 million shares of its common stock. The gross The post Intellia Raises $300 Million in Public Offering of Common Stock appeared first on Global Genes .
  • Rare Daily Staff AbCellera and Rallybio have entered into a strategic alliance to discover, develop, and commercialize novel antibody-based therapeutics for rare diseases. The multi-year, multi-target collaboration will combine AbCellera’s antibody discovery engine with Rallybio’s clinical and commercial expertise in rare diseases to identify optimal clinical candidates and ultimately deliver therapies to patients. “AbCellera’s clinically The post AbCellera and Rallybio Partner to Advance Antibody-Based Therapeutics for Rare Diseases appeared first on Global Genes .