What a wonderful story. As an adult with no children, I was given insight into what it would be like to have a child with a rare disease. I did love the words written that I have had myself:A lump might appear, something starts to hurt, a feeling of being “not feeling of being.” “Receiving a diagnosis is like being handed a road map in the middle of a forest. It shows the way—but not necessarily the way out.”
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Phone: (+1) 949-248-RARE (7273)
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